Happy Australia Day!
Today we launch SCN2A Australia. We look forward to working with families, researchers, clinicians and professional bodies to improve the lives of those who have SCN2A and their families.
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SCN2A Australia Mission:
WORK LOCALLY, CONNECT GLOBALLY.
-Connect Australian families and provide information and resources
-Link with and work directly with Australian researchers, clinicians and professional bodies.
-Work with researchers around the globe to ensure Australian families have access to research projects and any potential treatments.
-Work with other SCN2A bodies to co-ordinate activities world wide, including awareness raising.
-Raise awareness of SCN2A in Australia both with the public and health professionals
-Promote fundraising for SCN2a in Australia
-Work with relevant government departments and rare disease entities ensuring our work aligns with providing access to treatments when they become available.