SCN2A Research Registry in Simons Searchlight

Post author:David Cunnington
Post published:May 2, 2021
Post category:Conference 2021
Post comments:0 Comments

Jennifer Tjernagel outlines the work being done with the SCN2A Research Registry in Simons Searchlight.

SCN2A Australia is feeling grateful.

2 days ago

Wishing all the mothers and grandmothers in our SCN2A community a very special Mother's Day.We see you, and all you do. Drop a message below for them! ... See MoreSee Less

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SCN2A Australia

7 days ago

Praxis are excited to invite parents and caregivers to join the #SCN2A Caregiver Advisory Council. These experts will advise Praxis on the impact of SCN2A gene mutations and share insights into how patients and those that care for them are affected. The group will also also tackle important topics related to clinical trial design, clinical trial recruitment, community education and much more.Criteria for serving on the advisory council include:Being a family member or caregiver of a person living with a mutation in the SCN2A geneCan commit to serve on the committee for one calendar yearEnglish speaking (e.g., does not require a translator) Any questions can be directed to patientadvocacy@praxismedicines.com. If interested, please visit: bit.ly/3aJustz by May 14, 2021 ... See MoreSee Less

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