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      • SCN2A Research Registry in Simons Searchlight
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Read more about the article Collaboration with families – the key to treatment success

Collaboration with families – the key to treatment success

  • Post author:David Cunnington
  • Post published:April 14, 2021
  • Post category:Conference 2021
  • Post comments:0 Comments

Professor Ingrid Scheffer speaks to the importance of collaborating with families for successful treatment.

Continue ReadingCollaboration with families – the key to treatment success
Read more about the article Global Genes

Global Genes

  • Post author:David Cunnington
  • Post published:February 28, 2020
  • Post category:Podcast
  • Post comments:0 Comments

Global Genes connects, empowers and inspires the rare disease community and fosters collaboration between groups from around the world.

Continue ReadingGlobal Genes
Read more about the article Family Stories

Family Stories

  • Post author:David Cunnington
  • Post published:February 23, 2020
  • Post category:Podcast
  • Post comments:0 Comments

Having a child with SCN2A can have a significant impact on the whole family. Three parents tell their stories about having a child with SCN2A.

Continue ReadingFamily Stories

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