Conference 2021
Collaboration with families – the key to treatment success
Professor Ingrid Scheffer speaks to the importance of collaborating with families for successful treatment.
© All rights reserved. SCN2A Australia | Privacy Policy
families
Categories
Podcast
Global Genes
Global Genes connects, empowers and inspires the rare disease community and fosters collaboration between groups from around the world.
Podcast
Family Stories
Having a child with SCN2A can have a significant impact on the whole family. Three parents tell their stories about having a child with SCN2A.
Categories
Sign up to the newsletter for updates.
Outstanding plenary from Greg Pratt #HGSA2022ASM discussing #inequities in health outcomes for Aboriginal and Torres Strait Islander people + how their careful consultation on country is improving #equity of access to #genomics & #culturalsafety
2It was great to be able to present @swanaus parents views around genomic data, DNA samples and consent this morning at #HGSA2022. #SWAN parents want greater control over their child’s genomic data including who has access to it and how it is used.