The global coronavirus pandemic has brought significant challenges for us all, but particularly for children with developmental and epileptic encephalopathies.
The global coronavirus pandemic has brought significant challenges particularly for those with children with developmental and epileptic encephalopathies.
Prof Ingrid Scheffer discusses COVID-19 and issues relevant to children and adults with genetic epilepsy / DEEs and their families.
Outstanding plenary from Greg Pratt #HGSA2022ASM discussing #inequities in health outcomes for Aboriginal and Torres Strait Islander people + how their careful consultation on country is improving #equity of access to #genomics & #culturalsafety
2It was great to be able to present @swanaus parents views around genomic data, DNA samples and consent this morning at #HGSA2022. #SWAN parents want greater control over their child’s genomic data including who has access to it and how it is used.
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