Ciitizen is partnering with the SCN2A community and rare disease groups to empower patients and families with access to their health data and advance research.

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3 days ago

SCN2A Australia
PRAXIS Plus: Research Ethics in Practice - FREE Webinar Join our guest panellists as we explore the role of researchers, funders (including industry) and HRECs in supporting and promoting consumer led research. What more can and should each of these stakeholders do to ensure consumer involvement is embedded in research practice in truly meaningful ways. We have the resources to hand.... let’s get this done!⭐️ Kris Pierce Consumer Rep SCN2A Australia ⭐️ Leanne Weekes CT:IQ ⭐️ Anne McKenzie AM Telethon Kids Institute ⭐️ Liz Wilson IQVIA and ⭐️ Trina O'Donnell Bellberry 🗓Wednesday 23rd June⏰1000am-1130am💻zoom registration link: lnkd.in/ewPu9k9 This session is relevant to #HREC members and secretariat, #researchers and #researchmanagers, #pharma and #CRO and all #clinicaltrials staff. #praxisaus #praxisplus #webinarseries #fromcompliancetoexcellence ... See MoreSee Less
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5 days ago

SCN2A Australia
SCN2A is currently attending Global Genes Drug Development Symposium We have talked a lot about how we are getting for clinical trials.. Have you joined the movement??We have our regional registry: sign up details/link in comments. Natural History Study has been in place for 18months and is globally accessible. Email the team at scn2a@mcri.edu.auFlyer for NHS is in the comments. ... See MoreSee Less
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