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Ciitizen

Ciitizen is partnering with the SCN2A community and rare disease groups to empower patients and families with access to their health data and advance research.

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REMINDER: TOMORROW @ 11am AESTSCN2A NATURAL HISTORY STUDY - UPDATESIGN UP HERE: us02web.zoom.us/meeting/register/tZAuce-hrzMrGddJHfV3XptHABnHz5sJj3QM ... See MoreSee Less
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Join us on Sunday at the Global Genes regional meeting. It starts at 7pm with presentations from around our region. SCN2A Highlights and relevant presentations -SCN2A Family Story - Ursula DelaneySCN2A Panelist - Kris PierceSCN2A Natural History Study Poster - International Team Genetic Epilepsy and Supporting Families- Dr Emma PalmerUNdiagnosed and Rare - Heather Renton - CEO, Syndromes Without A Name - SWAN AustraliaIf you register for the regional meeting you get access to the full @global genes summit. All presentations will be available for 6 months post the conference.globalgenes.org/event/rare-patient-advocacy-summit/Message me for the regional code to join for FREE.#SCN2A #gg2021 #raredisease #CureSCN2A ... See MoreSee Less
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