Episode 7: Sleep
Children with severe developmental disabilities or autism often have difficulty with sleep which can not only impact on their sleep, but affect the whole family. To understand why this occurs and what can be done we talk to Assoc Prof Margot Davey from Monash Childrens’ Sleep Centre
Hosted by Kris Pierce and David Cunnington, parents of Will, who has SCN2A.
- Sleep in children with special health care needs – Research article
- Monash Childrens’ Sleep Centre
- Talk by Margot Davey on managing sleep in genetic epilepsies – video from 2hr41min to 3hr 16min
Assoc Prof Margot Davey is Director of the Melbourne Children’s Sleep Centre, Monash Medical Centre. Margot is also an adjunct senior lecturer in the Ritchie Centre, Monash Institute of Medical Research, Monash University. Her clinical practice is paediatric sleep medicine, and she works in public and private settings (Epworth Sleep Centre). Since 2006, Margot has been a chief investigator on four successful National Health and Medical Research Council (NHMRC) grants. She has numerous peer-reviewed publications.
Ms Kris Pierce RN MHSc MWellness, is a rare disease advocate and mother to Will who has SCN2A. Kris has held a range of board, project management, advocate and consumer representative roles and has been instrumental in working with local, state and federal governments to secure funding for multi-million dollar projects. Kris is highly skilled in building teams to work together collaboratively and is a co-founder of Genetic Epilepsy Team Australia (GETA) and SCN2A Australia, and a RARE Global Advocacy Leadership Council member.