Citizens United for Research in Epilepsy (CURE)

Episode 6: CURE Epilepsy

Citizens United for Research in Epilepsy (CUREwas founded in 1998 by parents of children with epilepsy. Since then CURE has raised more than $60 million to fund epilepsy research. We talk with Dr Laura Lubbers, Chief Scientific Offier of CURE, about CURE’s work.

Hosted by Kris Pierce and David Cunnington, parents of Will, who has SCN2A.

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Guest interview:

Dr Laura Lubbers is Chief Scientific Officer of CURE. Dr Lubbers is an action-oriented, highly collaborative neuroscientist and in vivo pharmacologist. Dr Lubbers brings more than 20 years of experience to her role at CURE. She has led research projects and developed novel chemical entities to counter the effects of stroke, ALS, Alzheimer’s Disease and Parkinson’s Disease. 

Dr Lubbers holds a Bachelor of Science in Physiology, a Master of Science in Veterinary Medical Sciences (Physiology), and a PhD in Veterinary Medical Sciences (Physiology) from the University of Illinois, Urbana.

Regular Hosts:

Ms Kris Pierce RN MHSc MWellness, is a rare disease advocate and mother to Will who has SCN2A. Kris has held a range of board, project management, advocate and consumer representative roles and has been instrumental in working with local, state and federal governments to secure funding for multi-million dollar projects. Kris is highly skilled in building teams to work together collaboratively and is a co-founder of Genetic Epilepsy Team Australia (GETA) and SCN2A Australia, and a RARE Global Advocacy Leadership Council member.

Follow Kris on LinkedIn or Twitter.

Dr David Cunnington is a sleep physician and father to Will who has SCN2A. He is director of Melbourne Sleep Disorders Centre, and co-founder and contributor to SleepHub. David trained in sleep medicine both in Australia and at Harvard Medical School in the United States. David’s clinical practice covers all areas of sleep medicine and he is actively involved in training health professionals in sleep. David is a regular commentator on sleep, both in traditional and social media.
Follow David’s posts on sleep on Facebook or Twitter

Transcript:

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