Episode 5: Working Together
Working collaboratively has been one of the hallmarks of Prof Daniel Lowenstein’s career. His passion for an inclusive approach has enabled him to bring together teams and achieve research results that would not have been possible without collaboration. In his clinical practice Prof Lowenstein is committed to providing well-explained, holistic, state-of-the-art care to all patients.
Hosted by Kris Pierce and David Cunnington, parents of Will, who has SCN2A.
Prof Daniel H. Lowenstein is the Robert B. and Ellinor Aird Professor of Neurology and Executive Vice Chancellor and Provost at the University of California, San Francisco (UCSF), Director of the UCSF Epilepsy Center, and Director of Physician-Scientist and Education Training Programs for the UCSF School of Medicine. He is known internationally for his contributions in the field of epilepsy including laboratory-based and clinical research, the clinical care of patients with epilepsy, and advocacy for the needs of patients and family members living with epilepsy.
Prof Lowenstein’s profile page from University of California, San Francisco
Ms Kris Pierce RN MHSc MWellness, is a rare disease advocate and mother to Will who has SCN2A. Kris has held a range of board, project management, advocate and consumer representative roles and has been instrumental in working with local, state and federal governments to secure funding for multi-million dollar projects. Kris is highly skilled in building teams to work together collaboratively and is a co-founder of Genetic Epilepsy Team Australia (GETA) and SCN2A Australia, and a RARE Global Advocacy Leadership Council member.