Episode 15: Global Genes
Global Genes connects, empowers and inspires the rare disease community. To learn more about Global Genes’ mission and the support they can give organisations around the world we spoke to Kimberly Haugstad, CEO of Global Genes.
Hosted by Kris Pierce and David Cunnington, parents of Will, who has SCN2A.
Kimberly Haugstad is Chief Executive Officer of Global Genes. Kimberly has worked in both corporate and nonprofit organizations in a variety of executive leadership and management roles and is passionate about building high performing staff, board and volunteer teams that achieve results. She joined Global Genes in 2019 and is focusing on expanding programs, enabling Global Genes to provide a larger patient impact globally.
Ms Kris Pierce RN MHSc MWellness, is a rare disease advocate and mother to Will who has SCN2A. Kris has held a range of board, project management, advocate and consumer representative roles and has been instrumental in working with local, state and federal governments to secure funding for multi-million dollar projects. Kris is highly skilled in building teams to work together collaboratively and is a co-founder of Genetic Epilepsy Team Australia (GETA) and SCN2A Australia, and a RARE Global Advocacy Leadership Council member.