Join Our Community

SCN2A is a rare disease and as such it is important to connect and build a community. 

We collect information that will help connect our community and proivde us with the information which is important to advocate for better supports as well as access to clinical trials and further medicines. 

We will send you a confirmation email once the form is completed along with an invitation to join our Facebook group. 

SCN2A Member

Details of person with SCN2A

Activites and Connections

I give permission for my personal information to be used by SCN2A to notify me of events, research projects and media opportunities and agree to receive the SCN2A newsletter. We may also share your information with SCN2A partners and with clinical registries and research.

Membership is free but if you would like to make a donation towards the much-needed funds to progress our mission and support our community, please click on the donate button below: