Categories

Podcast

Transition

For children with complex needs like developmental epileptic encephalopathies (DEEs) transition to adult care can be challenging.

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Podcast

Ciitizen

Ciitizen is partnering with the SCN2A community and rare disease groups to empower patients and families with access to their health data and advance research.

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Podcast

Simons Searchlight

Simons Searchlight aims to better understand genetic neurodevelopmental conditions, specifically those associated with autism spectrum disorder (ASD).

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Podcast

SFARI

Launched in 2006, SFARI is a scientific initiative within the Simons Foundation’s suite of programs. SFARI’s mission is to improve the understanding, diagnosis and treatment of autism spectrum disorders by funding innovative research.

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Podcast

Angel Aid

Angel Aid provides relief for mothers of children with rare disorders, helping them learn tools of self-care, and be listened to without judgement.

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