March 18, 2020 - SCN2A Australia

COVID-19

Prof Ingrid Scheffer discusses COVID-19 and issues relevant to children and adults with genetic epilepsy / DEEs and their families.

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SCN2A Australia

3 days ago

REPOSTING THIS PODCAST.

STRATEGIES FOR CARERS.

As the pandemic continues to impact on all of us in different ways this podcast is a reminder to all carers to remember to take care of yourself as well as those you care for.

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The global coronavirus pandemic has brought significant challenges particularly for those with children with developmental and epileptic encephalopathies.

In this episode of SCN2A Insights we are joined by Heather Renton of SWAN and Sue Lenzi, Mental Health Social Worker to discuss strategies for carers during the pandemic.

#SCN2A #carerfatigue #mentalhealth #selfcare #swan #raredisease

Syndromes Without A Name - SWAN Australia
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Strategies for Carers - SCN2A Insights - Omny.fm

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The global coronavirus pandemic has brought significant challenges particularly for those with children with developmental and epileptic encephalopathies.

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SCN2A Australia

3 days ago

So grateful of the advocacy Kate New is doing for the Jeans for Genes Australia day today. Raising awareness for an important program.👖🔬 JEANS FOR GENES DAY 2020 🔬👖

Today is Jeans for Genes Day, and my team and I are donning our jeans for a very special Greenway constituent: Lachy.

Due to issues with his SCN2A gene, as Lachy grew his parents noticed that he wasn’t meeting his developmental milestones. He was diagnosed with autism, severe intellectual disability and moderate cerebral palsy.

This year, this beautiful local family are trying to make a difference: Lachy is a Jeans for Genes Ambassador!

Lachy’s Mum Kate is organising ‘Laps for Lachy’ – an initiative to raise awareness of and funds for the important role that Jeans for Genes plays in supporting genetic research.

If you can, please consider supporting Jeans for Genes today by donating to Kate’s ‘Laps for Lachy’ fundraiser: www.myjeansforgenes.org.au/laps-for-lachy?fbclid=IwAR3MzIDDd3qx6bYAckHKTicBD_dlWUO4X6d7dNiG5V5h1X...

As Kate says “genetic research is on the cusp of something big and we know there is hope for a better future for Lachy”.

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