Connect with other SCN2A families and stay informed
We are here to help newly diagnosed families as well as those already diagnosed.
We want to help educate you and ensure you are informed as you navigate through the SCN2A journey.
We are parents of children who have SCN2A.
Although our children have all had varying journeys, they are affected by SCN2A a devastating genetic mutation that causes death and severe disability for many children.
We are dedicated to helping to develop treatments for SCN2A and genetic epilepsies and helping those working on and affected by genetic epilepsies better understand the conditions and live better lives.
We work with families, researchers, clinicians and professional bodies to improve the lives of those who have SCN2A and their families.
We also produce a podcast and a series of webinars on SCN2A and genetic epilepsies.
At SCN2A Australia, our mission is to improve the lives of individuals and families affected by SCN2A-related disorders.
Would you like to become a member of SCN2A Asia-Pacific?
Fill in our member form and be kept up-to-date with events, news, research and information from the SCN2A community.
Would you like to share your story to the SCN2A community?
Fill in our online form with your journey so far.
Partners are crucial in the success of not for profit organisations. We are grateful for our partners around the globe.